Palliative Care ACT and ACT Health have recently completed a piece of research into how best to support people at end of life, and their carers, to live and die well in the place of their choosing. The research's findings include that carer fatigue, the patient's rapid deteriaoration and carers/families not knowing the patient's preferences are key reason many people do not die in the place of their choosing.
Support that would be most valued by patients, families and carers include information on available services, a 24/7 helpline for advice or to organise support and information about the death and dying process.
Barriers to people receiving the care they and their carers wish for include, on the one hand, a lack of understanding of palliative care among medical professionals and, on the other, an unwillingness on the part of medical professionals to discuss terminal or end-of-life treatment.
The full report is available here.
PCACT has incorporated the findings of the research into its 2017-20 Strategic Plan, which you can find on the Governance page of this website, here.