An invitation to be part of a research project about support for end of life care
Palliative Care ACT (PC ACT) are undertaking a project to discover potential gaps in the palliative care system, with the overall aim of ensuring that people in the ACT who wish to die at home receive the appropriate end-of-life care.
The project, funded by ACT Health, will explore what clients, families, carers and the general community identify as gaps in the system, as well as what can be done to fill them.
PC ACT CEO Gayle Sweaney says that people who wish to die at home face barriers that have yet to be truly identified.
“The majority of people who wish to die at home are prevented from doing so by a variety of anecdotal but poorly researched, barriers to end of life care at home. Many of these people won’t die in their preferred place. Instead, they will die in our hospital settings or in residential care when their wish was to die at home,” Ms Sweaney said.
“We know we face new challenges in providing end-of-life care. Some of these are related to changes in demographics, with a larger proportion of aged people in the community, as well as some to changes in disease patterns such as more people with dementia.”
Studies show up to 70 per cent of people wish to die at home, however only 14 per cent have this wish fulfilled. The majority of patients who die in institutions could receive their end-of-life care at home if there was a wider variety of supports both from the health sector and the community.
This project will enable people to express their opinions on what services would enable them to die at home instead of an institution.
All interview participants are entered into a prize draw to win a $1000 worth of Microsoft software and games.
Also, there is an option to complete an online survey: https://www.surveymonkey.com/r/PJDVVBG